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This folder holds the following references to publications, sorted by year and author.

There are 90 references in this bibliography folder.

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Foster C, Herring J, Melham K, and Hope T (2013).
Intention and Foresight-From Ethics to Law and Back Again A Reply to McGee.
CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS, 22:86–91.

Morrison M, Hogarth S, and Kewell B (2013).
Biocapital and Innovation Paths: The Exploitation of Regenerative Medicine.
In: The Global Dynamics of Regenerative Medicine: A Social Science Critique, ed. by Webster, A, pp. 58–87, Palgrave Macmillan, Basingstoke, Hampshire (UK). Health, Technology and Society. (ISBN: 9781137026545).

Boddington P (2012).
Ethical Challenges in Genomics Research.
Springer, http://www.springer.com/biomed/human+genetics/book/978-3-642-23698-3. (ISBN: 978-3-642-23698-3).

Borry P, van Hellemondt R, Sprumont D, Jales CFD, Rial-Sebbag E, Spranger TM, Curren L, Kaye J, Nys H, and Howard H (2012).
Legislation on direct-to-consumer genetic testing in seven European countries.
Eur J Hum Genet, 20(7):715-21.

Budin-Ljøsne I, Harris JR, Kaye J, Knoppers BM, Tassé AM, Bravo E, Cambon-Thomsen A, Eriksson M, Kyvik KO, Litton JE, Perola M, and Rial-Sebbag E (2012).
ELSI challenges and strategies of national biobank infrastructures.
Norsk Epidemiologi, 21(2):155-160.

Dickenson D (2012).
Bioethics: All That Matters.
Hodder Education . (ISBN: 1444155806 ).

Kaye J (2012).
Embedding biobanks as tools for personalised medicine.
Norsk Epidemiologi, 21 (2):169-75.

Kaye J, Curren L, Anderson N, Edwards K, Fullerton S, Kanellopoulou N, Lund D, MacArthur D, Mascalzoni D, Shepherd J, Taylor P, Terry S, and Winter S (2012).
From patients to partners: participant-centric initiatives in biomedical research.
Nat Rev Genet, 13(5):371-6.

Kaye J, Meslin E, Knoppers B, Juengst E, Deschênes M, Cambon-Thomsen A, Chalmers D, De Vries J, Edwards K, Hoppe N, Kent A, Adebamowo C, Marshall P, and Kato K (2012).
ELSI 2.0 for Genomics and Society.
Science, 336(6082):673-674.

Murtagh M, Thorisson G, Wallace S, Kaye J, Demir I, Fortier I, Harris J, Cox D, Deschênes M, Laflamme P, Ferretti V, Sheehan N, Hudson T, Cambon Thomsen A, Stolk R, Knoppers B, Brookes A, and Burton P (2012).
Navigating the perfect [data] storm.
Norsk Epidemiologi, 21(2):203-209.

Foster C, Herring J, Hope T, and Melham K (2011).
The double effect effect.
Cambridge Quarterly of Healthcare Ethics, 1(17).

Kanellopoulou N (2011).
Reciprocity, Trust and Public Interest in Research Biobanking: in Search for a Balance.
In: Human Tissue Research - A Discussion of the Ethical and Legal Challenges from a European Perspective, ed. by Christian Lenk, Nils Hoppe, Katharina Beier, Claudia Wiesemann. Oxford University Press, Oxford, chap. 7, pp. 197 - 218. (ISBN: 978-0-19-958755-1).

Kaye J (2011).
From single biobanks to international networks: developing e-governance.
Human Genetics(0340-6717):1-6.

Bahadur G, and Morrison M (2010).
Patenting human pluripotent cells: balancing commercial, academic and ethical interests.
Hum Reprod, 25(1):14-21.

Bahadur G, Morrison M, and Machin L (2010).
Beyond the 'embryo question': human embryonic stem cell ethics in the context of biomaterial donation in the UK.
Reprod Biomed Online, 21(7):868-74.

Boddington P (2010).
Dietary choices, health and freedom: hidden fats, hidden choices, hidden constraints.
American Journal of Bioethics, 10(3):43-44.

Curren L, and Kaye J (2010).
Revoking consent: A 'blind spot' in data protection law?
Computer Law & Security Review, 26(3):273 - 283.

Curren L, and Kaye J (2010).
Data Subjects' Rights- Are they Inadequate.
Privacy and Data Protection, 10(5):8-9.

Curren L, Boddington P, Gowans H, Hawkins N, Kanellopoulou N, Kaye J, and Melham K (2010).
Identifiability, genomics and U.K. data protection law.
Eur J Health Law, 17(4):329-44.

Heeney C, Hawkins N, de Vr, Boddington P, and Kaye J (2010).
Assessing the Privacy Risks of Data Sharing in Genomics.
Public Health Genomics.

 
Document Actions

Oxford Medical Law and Ethics Discussion Group for HeLEX
HeLEX DPhil student, Andelka Phillips, is a co-convenor of the new Oxford Medical Law and Ethics Discussion Group, with Jesse Wall and Kate Greasley. This is a new discussion group based in the Law Faculty, but our aim is to include ethicists, scientists, medical researchers, clinicians and anyone interested in the medico-legal field. More info...

New report on biobanks by European Commission Expert Group
report on biobanking 2012Newly released is a report of the Expert Group on Dealing with Ethical and Regulatory Challenges of International Biobank Research. It is entitled Biobanks for Europe - A challenge for governance. Dr Jane Kaye, HeLEX Director, was the rapporteur. (Update: video available here.) Read more...

Other News

New paper published in Science by HeLEX Director Jane Kaye, Eric M Meslin, Bartha M Knoppers, Eric T Juengst, Mylène Deschênes, et al.
ELSI 2.0 for Genomics and Society
ELSI 2.0 will make it easy for an ELSI scholar in Africa to connect with other scholars around the world or to tap into resources not otherwise readily available. For a U.S.-based advocacy organization, the Collaboratory will provide essential services to extend the reach of work otherwise locked up in the academic literature. Read more...

Other News

Developing a Global Vision for the Future of ELSI Research
Global ELSIIn response to a paper in Nature, Dr Jane Kaye, Dr Eric M. Meslin, Prof Bartha Knoppers and Prof Eric T. Juengst have written a document on developing a global ELSI strategy for genomic medical research. You can download this as a PDF document here or you can read it online here and post your own comments.  To be kept updated, you can automatically join our mailing list by sending a blank email to globalelsi-subscribe at maillist.ox.ac.uk.

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