Publications
This folder holds the following references to publications, sorted by year and author.
There are 90 references in this bibliography folder.
Foster C, Herring J, Melham K, and Hope T (2013).
Intention and Foresight-From Ethics to Law and Back Again A Reply to McGee.
CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS, 22:86–91.
Morrison M, Hogarth S, and Kewell B (2013).
Biocapital and Innovation Paths: The Exploitation of Regenerative Medicine.
In: The Global Dynamics of Regenerative Medicine: A Social Science Critique, ed. by Webster, A, pp. 58–87, Palgrave Macmillan, Basingstoke, Hampshire (UK). Health, Technology and Society. (ISBN: 9781137026545).
Boddington P (2012).
Ethical Challenges in Genomics Research.
Springer, http://www.springer.com/biomed/human+genetics/book/978-3-642-23698-3. (ISBN: 978-3-642-23698-3).
Borry P, van Hellemondt R, Sprumont D, Jales CFD, Rial-Sebbag E, Spranger TM, Curren L, Kaye J, Nys H, and Howard H (2012).
Legislation on direct-to-consumer genetic testing in seven European countries.
Eur J Hum Genet, 20(7):715-21.
Budin-Ljøsne I, Harris JR, Kaye J, Knoppers BM, Tassé AM, Bravo E, Cambon-Thomsen A, Eriksson M, Kyvik KO, Litton JE, Perola M, and Rial-Sebbag E (2012).
ELSI challenges and strategies of national biobank infrastructures.
Norsk Epidemiologi, 21(2):155-160.
Dickenson D (2012).
Bioethics: All That Matters.
Hodder Education . (ISBN: 1444155806 ).
Kaye J (2012).
The Tension Between Data Sharing and the Protection of Privacy in Genomics Research.
Annu. Rev. Genomics Hum. Genet.
Kaye J (2012).
Embedding biobanks as tools for personalised medicine.
Norsk Epidemiologi, 21 (2):169-75.
Kaye J, Curren L, Anderson N, Edwards K, Fullerton S, Kanellopoulou N, Lund D, MacArthur D, Mascalzoni D, Shepherd J, Taylor P, Terry S, and Winter S (2012).
From patients to partners: participant-centric initiatives in biomedical research.
Nat Rev Genet, 13(5):371-6.
Kaye J, Meslin E, Knoppers B, Juengst E, Deschênes M, Cambon-Thomsen A, Chalmers D, De Vries J, Edwards K, Hoppe N, Kent A, Adebamowo C, Marshall P, and Kato K (2012).
ELSI 2.0 for Genomics and Society.
Science, 336(6082):673-674.
Lemmens T, and Telfer C (2012).
Access to information and the right to health: the human rights case for clinical trials transparency.
Am J Law Med, 38(1):63-112.
Murtagh M, Thorisson G, Wallace S, Kaye J, Demir I, Fortier I, Harris J, Cox D, Deschênes M, Laflamme P, Ferretti V, Sheehan N, Hudson T, Cambon Thomsen A, Stolk R, Knoppers B, Brookes A, and Burton P (2012).
Navigating the perfect [data] storm.
Norsk Epidemiologi, 21(2):203-209.
Dickenson D (2011).
Regulating (or not) reproductive medicine: an alternative to letting the market decide.
Indian J Med Ethics, 8(3):175-9.
Foster C, Herring J, Hope T, and Melham K (2011).
The double effect effect.
Cambridge Quarterly of Healthcare Ethics, 1(17).
Kanellopoulou N (2011).
Reciprocity, Trust and Public Interest in Research Biobanking: in Search for a Balance.
In: Human Tissue Research - A Discussion of the Ethical and Legal Challenges from a European Perspective, ed. by Christian Lenk, Nils Hoppe, Katharina Beier, Claudia Wiesemann. Oxford University Press, Oxford, chap. 7, pp. 197 - 218. (ISBN: 978-0-19-958755-1).
Kaye J (2011).
From single biobanks to international networks: developing e-governance.
Human Genetics(0340-6717):1-6.
Bahadur G, and Morrison M (2010).
Patenting human pluripotent cells: balancing commercial, academic and ethical interests.
Hum Reprod, 25(1):14-21.
Bahadur G, Morrison M, and Machin L (2010).
Beyond the 'embryo question': human embryonic stem cell ethics in the context of biomaterial donation in the UK.
Reprod Biomed Online, 21(7):868-74.
Boddingon P (2010).
Repeating History: Use and Abuse of Research Findings and the Misrepresentation of Responsibility for Health Conditions.
American Journal of Bioethics, 10(2):57-58.
Boddington P (2010).
Dietary choices, health and freedom: hidden fats, hidden choices, hidden constraints.
American Journal of Bioethics, 10(3):43-44.
Boddington P (2010).
Repeating history: use and abuse of research findings and misattributions of responsibility for health.
American Journal of Bioethics, 10(2):57-58.
Curren L, and Kaye J (2010).
Revoking consent: A 'blind spot' in data protection law?
Computer Law & Security Review, 26(3):273 - 283.
Curren L, and Kaye J (2010).
Data Subjects' Rights- Are they Inadequate.
Privacy and Data Protection, 10(5):8-9.
Curren L, Boddington P, Gowans H, Hawkins N, Kanellopoulou N, Kaye J, and Melham K (2010).
Identifiability, genomics and U.K. data protection law.
Eur J Health Law, 17(4):329-44.
Heeney C, Hawkins N, de Vr, Boddington P, and Kaye J (2010).
Assessing the Privacy Risks of Data Sharing in Genomics.
Public Health Genomics.



