Sage Bionetworks Commons Congress
HeLEX Director, Dr Jane Kaye, will be talking at the Sage Congress in San Francisco on 20 and 21 April 2012. There will be a free live webcast.
There will be a free live webcast of the Congress sessions at the Hyatt. Videos of all the presentations including Congress Unplugged! will also be available on our website and iTunes shortly after the Congress. The Twitter hashtag #SageCon is again being used for real time microblogging by @SageBio and many other live and virtual participants.
Dr Kaye will be talking about dynamic consent in her role as anchor and moderator.
About this event:
“WHY CAN’T WE BUILD DISEASE MODELS TOGETHER”
"2012 will be the third Commons Congress. Sage Bionetworks is in its fourth year and is deep into the transition from non-profit start-up to a provider of fundamental new infrastructure for network biology. The first Congress session will focus on this transition and the progress to date on how early investments in technical and legal data sharing platforms are beginning to pay off in faster science, increased patient engagement, and disruptive projects that can shake up the entire pharmaceutical industry. The second session will review activities and opportunities in ongoing pilots and projects. The third session will highlight emerging projects designed to shift sharing behaviors in drug development (Arch2POCM) and in disrupting the current medical-industrial social value chain.
The Congress program will include include deep dives into the Synapse technical platform and Portable Legal Consent systems that together make data about individual patients the key to large-scale disease research. Platform sessions will detail initiatives to open previously closed clinical trial data and bring patients into the research mix."