News and Events
HeLEX news and events
HeLEX is involved in the Personal Genome Project that is being led by Professor Stephan Beck from UCL. Here are the links to some of the news coverage.
Over 70 leading health care, research, and disease advocacy organizations that together involve colleagues in over 40 countries have taken the first steps to form an international alliance dedicated to enabling secure sharing of genomic and clinical data.
We are currently offering two non-stipendiary summer internships for the month of July 2013, at the Centre for Health, Law and Emerging Technologies, in the Department of Public Health at the University of Oxford.
Members of the newly established Emerging Science and Bioethics Advisory Committee (ESBAC) have been confirmed and will take up post immediately...
The Brocher Foundation is located on the shores of the Geneva Lake, in Hermance (Geneva - Switzerland). The Brocher Foundation residencies last between one and four months. They give researchers the opportunity to work at the Brocher Centre on projects on the ethical, legal and social implications for humankind of recent medical research and new technologies. Every month a dozen of visiting researchers live and concentrate on their research project at the Foundation.
Keystone Symposia is pleased to announce its conference on “Human Genomics and Personalized Medicine,” taking place June 17-21, 2013 at Hotel Clarion Sign in Stockholm, Sweden. The abstract and scholarship deadline for this meeting is at midnight US Mountain Time on Feb 20, 2013.
Thursday 6th December 13:00 – 14:00hrs Robert Turner Lecture Theatre OCDEM
HeLEX DPhil student, Andelka Phillips, is a co-convenor of the new Oxford Medical Law and Ethics Discussion Group, with Jesse Wall and Kate Greasley.
In February 2012, Dr Jane Kaye was one of the presenters at the US Presidential Commission for the Study of Bioethical Issues. The Commission has now released its latest report which is available for download on its website...
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Donna Dickenson, HeLEX Associate Researcher, has published a new book "Bioethics: All That Matters". It shows how new developments in biotechnology – like genetics, stem cell research and artificial reproduction – arouse both our greatest hopes and our greatest fears. Many people invest the new biotechnology with all the aspirations and faith once accorded to religious salvation. But does everyone benefit equally from scientific progress?
We are re-advertising a post of Researcher in Law at HeLEX. Click on the "Read more" link below for further information. If you wish to apply, please go to https://www.recruit.ox.ac.uk/pls/hrisliverecruit/erq_jobspec_version_4.jobspec?p_id=103277
"From patients to partners: participant-centric initiatives in biomedical research." Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term interactive partnerships. Here, we give an overview of this rapidly moving field by providing an analysis of the different PCI approaches, as well as the benefits and challenges of implementing PCIs. This paper is authored by Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd, Patrick L Taylor, Sharon F Terry, and Stefan F Winter
Newly released is a report of the Expert Group on Dealing with Ethical and Regulatory Challenges of International Biobank Research. It is entitled Biobanks for Europe - A challenge for governance. Chair: Herbert Gottweis Rapporteur: Jane Kaye Members: Fabrizia Bignami, Emmanuelle Rial-Sebbag, Roberto Lattanzi, Milan Macek.
Teresa is an academic visitor at HeLEX and her post entitled "UK Users’ and Genetics Clinicians’ experiences of direct-to-consumer genetic testing (DTCGT)" is online now.
The NIGB Roadshow will take place over 27-29 June
"The Nuffield Council on Bioethics is seeking a graduate for a short term intern position to help with the preparation of background material on possible topics that the Council may consider in the future. The Council currently has a 'long list' of over thirty possible topics, and the task of the intern will be to produce a succinct overview of key issues arising in each topic in order to help the Council prioritise future work."