Selected Publications

• Borry Pascal, van Hellemondt Rachel E, Sprumont Dominique, Jales Camilla FD, Rial-Sebbag Emmanuelle, Spranger Tade M, Curren Liam, Kaye Jane, Nys Herman, and Howard Heidi (2012) Legislation on direct-to-consumer genetic testing in seven European countries. Eur J Hum Genet, 20(7):715-21.

• Budin-Ljøsne Isabelle, Harris Jennifer R, Kaye Jane, Knoppers Bartha M, Tassé Anne M, Bravo Elena, Cambon-Thomsen Anne, Eriksson Mikael, Kyvik Kirsten O, Litton Jan-Eric, Perola Markus, and Rial-Sebbag Emmanuelle (2012) ELSI challenges and strategies of national biobank infrastructures Norsk Epidemiologi, 21(2):155-160.

• Kaye Jane (2012) The Tension Between Data Sharing and the Protection of Privacy in Genomics Research Annu. Rev. Genomics Hum. Genet.

• Kaye Jane (2012) Embedding biobanks as tools for personalised medicine Norsk Epidemiologi, 21 (2):169-75.

• Kaye Jane, Curren Liam, Anderson Nick, Edwards Kelly, Fullerton Stephanie M, Kanellopoulou Nadja, Lund David, MacArthur Daniel G, Mascalzoni Deborah, Shepherd James, Taylor Patrick L, Terry Sharon F, and Winter Stefan F (2012) From patients to partners: participant-centric initiatives in biomedical research. Nat Rev Genet, 13(5):371-6.

Photo by Adrian Arbib

Jane Kaye, D.Phil., L.L.B. 
 
Jane Kaye is Director of the Centre for Law, Health and Emerging Technologies at Oxford (HeLEX) based in the Department of Public Health at the University of Oxford. She obtained her degrees from the Australian National University (BA); University of Melbourne (LLB); and University of Oxford (DPhil). She was admitted to practice as a solicitor/barrister in 1997. She is advisor to a number of F7 projects and is on the Sample and Ethics Committee of the 1000 Genomes Project;  International Scientific Advisory Board Canadians for Tomorrow Project; and the UK10K Ethics Advisory Group. She is also a member of the Ethics and Confidentiality Committee of the UK National Information Governance Board. She is also on the editorial boards of Law, Innovation and Technology, Journal of Law and Information Science, and Genomics, Policy and Society.

Her research involves investigating the relationships between law, ethics, and practice in the area of emerging technologies in health. The main focus is on genomics with an emphasis on biobanks, privacy, data-sharing frameworks, global governance and translational research.