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Two summer internships at HeLEX for July 2013
We are currently offering two non-stipendiary summer internships for the month of July 2013, at the Centre for Health, Law and Emerging Technologies, in the Department of Public Health at the University of Oxford.
Emerging Science and Bioethics Advisory Committee
Members of the newly established Emerging Science and Bioethics Advisory Committee (ESBAC) have been confirmed and will take up post immediately...
Brocher Foundation announces call for residencies for 2014
The Brocher Foundation is located on the shores of the Geneva Lake, in Hermance (Geneva - Switzerland). The Brocher Foundation residencies last between one and four months. They give researchers the opportunity to work at the Brocher Centre on projects on the ethical, legal and social implications for humankind of recent medical research and new technologies. Every month a dozen of visiting researchers live and concentrate on their research project at the Foundation.
Announcing Keystone Symposia’s 2013 Conference on “Human Genomics and Personalized Medicine”
Keystone Symposia is pleased to announce its conference on “Human Genomics and Personalized Medicine,” taking place June 17-21, 2013 at Hotel Clarion Sign in Stockholm, Sweden. The abstract and scholarship deadline for this meeting is at midnight US Mountain Time on Feb 20, 2013.
Research Network Christmas Debate: Do We Need Public Involvement in Research?
Thursday 6th December 13:00 – 14:00hrs Robert Turner Lecture Theatre OCDEM
Oxford Medical Law and Ethics Discussion Group for HeLEX
HeLEX DPhil student, Andelka Phillips, is a co-convenor of the new Oxford Medical Law and Ethics Discussion Group, with Jesse Wall and Kate Greasley.
US Presidential Commission releases report on Privacy and Progress in Whole Genome Sequencing
In February 2012, Dr Jane Kaye was one of the presenters at the US Presidential Commission for the Study of Bioethical Issues. The Commission has now released its latest report which is available for download on its website...
Two research positions available at HeLEX
We are now advertising or a Senior Researcher (Grade 8) and a Bioethics Researcher (Grade 7) to support the new StemBANCC Project. StemBANCC is a flagship inter-disciplinary research project involving academic and commercial partners. The objective of the project is to develop a human induced pluripotent stem cell (iPSC) bioresource to be used as a platform for drug discovery. Candidates will need to possess a PhD in science, ethics, policy or law. The closing date is 13 September.
First newsletter of the BioSHaRe Project is available
Please click below for further information and to download the newsletter.
Research Assistant Position at HeLEX
HeLEX is recruiting for a research assistant to carry out background research for publications, presentations and reports under the direction of Dr. Jane Kaye. The post is fixed term for 10 months at Grade 6. Closing date for applications is 12 noon on Monday, 3rd September 2012. Interviews will be held on 11th September 2012.
New StemBANCC Project: 2 new research positions at HeLEX
We will shortly be advertising for Senior Researcher (Grade 8) and a Bioethics Researcher (Grade 7) to support the new StemBANCC Project. Candidates will possess a PhD in science, ethics, policy or law. Please check back here soon for announcements about the official job advertisements. In the meantime, informal enquiries may be sent to helex@dph.ox.ac.uk.
New Book on Bioethics by Donna Dickenson
Donna Dickenson, HeLEX Associate Researcher, has published a new book "Bioethics: All That Matters". It shows how new developments in biotechnology – like genetics, stem cell research and artificial reproduction – arouse both our greatest hopes and our greatest fears. Many people invest the new biotechnology with all the aspirations and faith once accorded to religious salvation. But does everyone benefit equally from scientific progress?
New post at HeLEX - Researcher in Law
We are re-advertising a post of Researcher in Law at HeLEX. Click on the "Read more" link below for further information. If you wish to apply, please go to https://www.recruit.ox.ac.uk/pls/hrisliverecruit/erq_jobspec_version_4.jobspec?p_id=103277
New paper published in Nature Reviews Genetics
"From patients to partners: participant-centric initiatives in biomedical research." Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term interactive partnerships. Here, we give an overview of this rapidly moving field by providing an analysis of the different PCI approaches, as well as the benefits and challenges of implementing PCIs. This paper is authored by Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd, Patrick L Taylor, Sharon F Terry, and Stefan F Winter
New report on biobanks by European Commission Expert Group
Newly released is a report of the Expert Group on Dealing with Ethical and Regulatory Challenges of International Biobank Research. It is entitled Biobanks for Europe - A challenge for governance. Chair: Herbert Gottweis Rapporteur: Jane Kaye Members: Fabrizia Bignami, Emmanuelle Rial-Sebbag, Roberto Lattanzi, Milan Macek.
Teresa Finlay writes about her research on direct-to-consumer genetic testing in 'Genomes Unzipped'
Teresa is an academic visitor at HeLEX and her post entitled "UK Users’ and Genetics Clinicians’ experiences of direct-to-consumer genetic testing (DTCGT)" is online now.
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Oxford Medical Law and Ethics Discussion Group for HeLEX
HeLEX DPhil student,
Andelka Phillips, is a co-convenor of the new Oxford Medical Law and Ethics Discussion Group, with Jesse Wall and Kate Greasley. This is a new discussion group based in the Law Faculty, but our aim is to include ethicists, scientists, medical researchers, clinicians and anyone interested in the medico-legal field. More info...
New report on biobanks by European Commission Expert Group
Newly released is a report of the Expert Group on Dealing with Ethical and Regulatory Challenges of International Biobank Research. It is entitled Biobanks for Europe - A challenge for governance. Dr Jane Kaye, HeLEX Director, was the rapporteur. (Update: video available here.) Read more...
New paper published in Science by HeLEX Director Jane Kaye, Eric M Meslin, Bartha M Knoppers, Eric T Juengst, Mylène Deschênes, et al.
ELSI 2.0 for Genomics and Society
ELSI 2.0 will make it easy for an ELSI scholar in Africa to connect with other scholars around the world or to tap into resources not otherwise readily available. For a U.S.-based advocacy organization, the Collaboratory will provide essential services to extend the reach of work otherwise locked up in the academic literature. Read more...
Developing a Global Vision for the Future of ELSI Research
In response to a paper in Nature, Dr Jane Kaye, Dr Eric M. Meslin, Prof Bartha Knoppers and Prof Eric T. Juengst have written a document on developing a global ELSI strategy for genomic medical research. You can download this as a PDF document here or you can read it online here and post your own comments. To be kept updated, you can automatically join our mailing list by sending a blank email to globalelsi-subscribe at maillist.ox.ac.uk.
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